Today was Claire's 18 month check-up.
It started snowing pretty heavily last night, and even Ben said the roads were bad, so I called a friend and asked her to take me to the check-up. She said she would as long as she got to make fun of me the entire time for my unwillingness to drive in the snow.
I considred- briefly- changing the appointment, but I really didn't want to because of a few concerns I had:
1. Claire's continued lack of weight gain
2. Claire's lips and mouth turn blue/purple on a consistent basis
3. Audra keeps squinting and saying her "eye-bops" (eyeballs) hurt, so I wanted to ask the doctor about how to get her checked out (which I learned I just need to take her in- we don't have vision insurance so I can go anywhere- anyone have a good pediactric eye doctor in the HR area they would recommend?)
So this morning I was chauffered to the doctor. Even though the roads were fine, I am forever grateful she gave me the ride. She took Audra home with her so I didn't have to deal with her during the appointment, and I am so glad she did because it ended up being over 2 hours. Yup, a two hour check-up.
Remember that thing I mentioned earlier about Claire's lips turning blue? Well, that's not a good thing.
It has been happening for a couple of months now- every couple of days (probably 2-4 times a week) they will turn blue and stay that way for a few hours. I had done some internet research on it on Thursday and I was actually on hold with the doctor's office to see if I should bring her in then, when the internet actually CALMED my worries and made me feel like an overreacting parent, so I hung up the phone and decided to wait until today.
What did the internet say? It seems a lot of parents were saying they had this exact same issue with their toddlers. They virtually all said that it turned out to be absolutely nothing. So, I decided it could be one of two things:
1. Nothing
2. A hole in her heart
Because these parents really were describing exactly what I was experiencing with Claire, I decided it could wait until today. I figured she would do some tests and nothing would show up and we would move on with our lives.
The doctor was concerned and we ran some tests- an EKG (monitors her heart) and a pulse ox (monitors her oxygen levels in her blood). The first thought from the doctor is that something is wrong with her heart- it is not normal apparently for children to turn blue.
Here is Claire getting her EKG. Believe it or not, she actually did great. For the pulse ox, I had to hold her and keep her relatively still for 35 minutes. That was hard, but having all these wires on her for the EKG mostly just confused and mesmerized her and she was fine
Both tests came back perfect- nothing was abnormal at all. The doctor did find a slight heart murmur, but nothing that would ordinarily concern her. With the blue, however, it could mean something- or nothing at all.
What's next? She will be seeing a cardiologist sometime this week- I am still in the process of jumping through hoops to get that scheduled. The cardiologist will do an ultrasound of the heart and perhaps a couple of other things to see if he finds anything.***
If he finds nothing, we will then do a sleep study (if that happens, I will need some tips from you Jenny in navigating Children's) to see if it is some kind of sleep disorder like sleep apnea or something.
If nothing is found there, she doesn't think there is much more to do. It could have something to do with her lungs, but because there are NO other symptoms, she doesn't think it is that. She is leaning a little more to something with the heart, but said she is optimistic by the results of the EKG and pulse ox, but that we need to rule out all of the scary stuff to be sure.
I am voting for nothing is wrong. That is what I am going with until I hear otherwise.I am choosing to have faith over fear. Some people might say I am choosing denial over fear. I know very well this could be a tragic road that we could be going down. But when I think about heart surgery or seeing my baby lying in the hospital bed tied up to tubes and wires fighting for her life...well, I can't think that way. Not until I absolutely have to- until I am forced to. So I will choose to believe that her body simply needs to adjust to the high altitude and that she will be just fine.
But prayers would be appreciated.
***UPDATE: Somebody cancelled their appointment and we were able to sneak in tomorrow (Tuesday) morning at 10:30. By noon we should know if and how serious this is.***
Other than that potentially life altering problem, Claire looks great. Here are the stats:
Weight: 21 lbs 3.5 oz- 10% (yea, we can switch to a front facing carsesat!)
Height: 32'' -62%
Head: 47 cm 64%
There is not a whole lot more to add since the Christmas update I gave on her, but she is speaking a whole lot more. Literally in just the past couple of weeks her language skills have really taken hold. I need to try and get some video of her!
Also, she now really loves dollies or this stuffed Pooh bear she got from a friend. She likes to hold them and love them. She hasn't figured out how to give kisses yet, but she still gives awesome hugs and great pats on the back.
Oh, and she loves walking on her tippy tippy toes- it is super cute.
We sure do love our "Little Pooch" (as Audra now calls her), and we plan on having her around for a long, long time!